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It has been almost 4 months since Michałek was diagnosed.

For the past 3 months, we have been talking to the Cornell Medical College in New York, but we still haven’t received any formal decision about Michałek’s participation in the experimental therapy.

We keep fighting for our little son, we’re doing whatever we can, but the disease doesn’t give up and keeps trying to take him away from us.

Despite ongoing intensive rehabilitation, acupuncture, and meetings with an educationalist and a speech therapist, we’ve noticed a turn for the worse. The symptoms started to appear at night as well, making it difficult for Michaś to sleep.

I keep telling my sunshine that he must fight, that he cannot give up, because he needs to get on a plane to the US for his therapy. When he hears that, he smiles so beautifully …